Today we went to the ENT, Kieran's speech is behind (Average is 3-50+ words, Kieran has just over 10). We were worried that her hearing was the reason for her speech. Turns out we were right her hearing is the reason for her speech issues. When the did the first test to see how her ear drum reacts it wasn't good, her left ear hardly had a reaction at all, a tiny one at the end of the the flat line, the right had a slightly better one but still not good. And the hearing in her left ear wasn't good either (they didn't test her right?!) He said she was hearing at 30 decibels and they wanted it at 15 or higher (said the lower the # the more they could hear the softer and quieter sounds) so not terribly bad but he was worried about her ear drum not reacting like it should.
Like we thought he brought up tubes. Kieran's only had 3 ear infections since September so that wasn't the worry, he said normally kids like that with fluid on their ears he would just recheck in 6 weeks when the weather warms up. What he was worried about is the fact that its affecting her hearing and her speech, because of that he's going to put tubes in. He said we'll do the tubes then a few weeks later we will check her hearing again to see if it helps. He said this kind of hearing loss is normally reversible, in 5% (I think it was) of patients it isn't.
We are waiting on authorization from insurance but once thats in we are scheduled for the surgery on the 17th of Feb. He was also sort of worried about her tonsils and adenoids, they were larger then they should be, he said medium, so not as large as Seamus' were but he wants to watch that too. He also said they will possibly take out the adenoids if the tubes alone don't help the draining (The left ear was really full, the right a little)
Showing posts with label doctors. Show all posts
Showing posts with label doctors. Show all posts
Monday, January 31, 2011
Thursday, January 27, 2011
Been on a Hiatus
Sorry for the lack of posts since December. Seamus had a break from school, for the winter holidays and it hit us really hard. We had a lot of break downs and behavioral issues. We ended up stopping the brushing technique because it became too much of a fight. Some times he would asked to be brushed others I had to make him. Our OT said that it would cause him to regress on some behaviors but only for 2 weeks, after a month of it we couldn't take it any more. So now we're back to square 1 trying to find something else, hopefully the listening therapy but he doesn't like wearing the headphones so I'm not sure.
Other news about Seamus, we had a follow up at the Eye Specialist a few weeks ago, where we thought we would get to stop doing the dilating drops, but nope. The eye doctor (a new one, the main one in the office, since the old one left)didn't see enough of an improvement to let us stop. He has to continue the drops till April, then we will see the specialist again and decide from there whether or not to do the surgery on his eye.
Miss Kieran started Speech back in December. Her's is pretty delayed, only saying around 10 words and most are the same word just slightly said different. She sees the same speech therapist Seamus does so that's nice. Early Headstart has been worried with her hearing even though her receptive language (on the ST's test) was through the roof, so they kept testing her with the ear test that goes in the ear, which she failed multiple times since she pulls it out. I asked our pedi for a referral to the ENT (same one Seamus went to for his tonsil and adenoid surgery) to get tested in the sound booth. I'm glad that I got that referral. I found out on Saturday, when I took her to the pedi for a different reason, that she STILL has fluid on her left ear, its been months now that its been there. I'm actually quite irritated the doctors haven't done anything sooner when I kept asking about it. The doc I saw Saturday (in the office there's quite a few pedi's and NP's, when you do a "walk in" or same day appt, you see whoever is available, normally not our usual pedi.) said the ENT will most likely tube the ear, something I asked about in November to a different doc and he told me no <_<. The doc on Saturday told me that the fluid is probably the reason her speech is so bad, if its been there this long she's most likely not hearing out of that ear so its causing her to not hear words correctly. We have our ENT appt on Monday the 31st, so I'll find out more then. I kind of have to laugh though, Seamus was 2yrs 2mo old when he went to the ENT for his snoring and sleep apena, Kieran will be 22mo when she goes, pretty close to the same age, and if she gets surgery on the ear then again pretty close to the same age, lol.
Other news about Seamus, we had a follow up at the Eye Specialist a few weeks ago, where we thought we would get to stop doing the dilating drops, but nope. The eye doctor (a new one, the main one in the office, since the old one left)didn't see enough of an improvement to let us stop. He has to continue the drops till April, then we will see the specialist again and decide from there whether or not to do the surgery on his eye.
Miss Kieran started Speech back in December. Her's is pretty delayed, only saying around 10 words and most are the same word just slightly said different. She sees the same speech therapist Seamus does so that's nice. Early Headstart has been worried with her hearing even though her receptive language (on the ST's test) was through the roof, so they kept testing her with the ear test that goes in the ear, which she failed multiple times since she pulls it out. I asked our pedi for a referral to the ENT (same one Seamus went to for his tonsil and adenoid surgery) to get tested in the sound booth. I'm glad that I got that referral. I found out on Saturday, when I took her to the pedi for a different reason, that she STILL has fluid on her left ear, its been months now that its been there. I'm actually quite irritated the doctors haven't done anything sooner when I kept asking about it. The doc I saw Saturday (in the office there's quite a few pedi's and NP's, when you do a "walk in" or same day appt, you see whoever is available, normally not our usual pedi.) said the ENT will most likely tube the ear, something I asked about in November to a different doc and he told me no <_<. The doc on Saturday told me that the fluid is probably the reason her speech is so bad, if its been there this long she's most likely not hearing out of that ear so its causing her to not hear words correctly. We have our ENT appt on Monday the 31st, so I'll find out more then. I kind of have to laugh though, Seamus was 2yrs 2mo old when he went to the ENT for his snoring and sleep apena, Kieran will be 22mo when she goes, pretty close to the same age, and if she gets surgery on the ear then again pretty close to the same age, lol.
Saturday, September 11, 2010
Its official
Seamus does have Sensory Processing Disorder (SPD). To what extent and what sub category I don't know yet, Kieran was being a booger at the appt and I missed half the testing the OT did and we couldn't talk much after cause Seamus kept taking off and grabbing everything. We will go to OT once a week till the end of the year (after that his insurance will only provide 24 visits a year), along with his 2 speech visits each week.
Seamus also got into Headstart which I'm very thankful for. They are also going to help us with further testing, he still shows quite a few signs of Aspergers, which can go hand in hand with SPD. He starts school on September 20th, and is in the morning class from 8am-11:45am. I'm excited but sad at the same time, sad he wont be home but glad to get a little break from him 4 days a week.
Its taken over 3yrs to finally get to a point that things are making since with him, but I'm glad we are finally on the right track. I'm glad we will be learning better ways to help him learn and get him caught up(like learning ABC's, counting past 10, more then 3 shapes, how to draw more then lines, etc), and how to deal with his behaviors. I guess part of his behavioral issues are from SPD cause he doesn't know how to handle the emotions and will outburst instead.
My cute blinkie that Niamh on JustMommies made for me
Seamus also got into Headstart which I'm very thankful for. They are also going to help us with further testing, he still shows quite a few signs of Aspergers, which can go hand in hand with SPD. He starts school on September 20th, and is in the morning class from 8am-11:45am. I'm excited but sad at the same time, sad he wont be home but glad to get a little break from him 4 days a week.
Its taken over 3yrs to finally get to a point that things are making since with him, but I'm glad we are finally on the right track. I'm glad we will be learning better ways to help him learn and get him caught up(like learning ABC's, counting past 10, more then 3 shapes, how to draw more then lines, etc), and how to deal with his behaviors. I guess part of his behavioral issues are from SPD cause he doesn't know how to handle the emotions and will outburst instead.
My cute blinkie that Niamh on JustMommies made for me
Monday, August 30, 2010
Always fear the noises you hear...coming from a 4yr old...
((Warning pictures at end of post, not all will want to see))
Mr. Seamus is hyper, hardly ever stopping and non listening(teenager already?!). Tonight was full of telling him to stop running in our small living room (apx. 12'x12'). I went to the kitchen to do some dishes and get dinner made and the hubby was on his computer(which is in the kitchen looking into the living room. The kids were playing in the living room, running even after being told to stop. Next thing I know we hear a super thud, then the, "Owie, Owie, OWIE!!" screams. Hubby gets to Seamus first since he was less then 3ft away. As hubby went to give Seamus a hug, thinking it was just another bonk on the head, I notice the blood pouring down the side of his face. I know head injury's bleed a lot, but holy cow I didn't expect that much. I figured with how much blood and we needed to take him to the doctor. Our pediatrician's have 3 offices in 3 towns in our county, and I called to tell them we were coming into the one in our town...but they had just closed an hour before. Our only option was the main office in the big town in our county which was 15minutes away taking the interstate. The whole drive Seamus was fine, quiet for him, but fine. The bleeding had stopped on the way too. We had a 15minute wait after we got to the office, but Seamus did well sitting there and wanted to play (covered in caked on blood >.<).
When we get called back, the nurse wants to clean it up so the NP could get a better look at it. Just the sight of the water bottles set Seamus off and the blood started coming again. After the nurse got it all cleaned she said the NP would be in to see if she would close it with the glue or stitches. When the NP came in we were expecting her to say that she would glue it and we'd be on our way...not how it happened. The gash was too wide to use glue(its a little over an inch long and around 1/4-1/2" wide), and she said he needed 6-8 stitches. Poor Seamus, it was horrible holding him down while she trimmed his hair, he was screaming(they herd him out front in the lobby too) which was making him bleed worse. She couldn't do the 6-8 stitches because of how he was being so instead she did 3 or 4 and then a mattress stitch (which she said was a larger one to make up for the ones she couldn't do). He has to keep them in for 7 days then get removed. Hope the next 7 days go smoothly and he doesn't mess with them.
Warning Pictures are a little gory.
This was from hubby's cell phone at the doc's before the nurse cleaned him(after we'd wiped him down and held pressure on it before we got to the doc) so the picture quality isn't very good.
And after once we got home
Mr. Seamus is hyper, hardly ever stopping and non listening(teenager already?!). Tonight was full of telling him to stop running in our small living room (apx. 12'x12'). I went to the kitchen to do some dishes and get dinner made and the hubby was on his computer(which is in the kitchen looking into the living room. The kids were playing in the living room, running even after being told to stop. Next thing I know we hear a super thud, then the, "Owie, Owie, OWIE!!" screams. Hubby gets to Seamus first since he was less then 3ft away. As hubby went to give Seamus a hug, thinking it was just another bonk on the head, I notice the blood pouring down the side of his face. I know head injury's bleed a lot, but holy cow I didn't expect that much. I figured with how much blood and we needed to take him to the doctor. Our pediatrician's have 3 offices in 3 towns in our county, and I called to tell them we were coming into the one in our town...but they had just closed an hour before. Our only option was the main office in the big town in our county which was 15minutes away taking the interstate. The whole drive Seamus was fine, quiet for him, but fine. The bleeding had stopped on the way too. We had a 15minute wait after we got to the office, but Seamus did well sitting there and wanted to play (covered in caked on blood >.<).
When we get called back, the nurse wants to clean it up so the NP could get a better look at it. Just the sight of the water bottles set Seamus off and the blood started coming again. After the nurse got it all cleaned she said the NP would be in to see if she would close it with the glue or stitches. When the NP came in we were expecting her to say that she would glue it and we'd be on our way...not how it happened. The gash was too wide to use glue(its a little over an inch long and around 1/4-1/2" wide), and she said he needed 6-8 stitches. Poor Seamus, it was horrible holding him down while she trimmed his hair, he was screaming(they herd him out front in the lobby too) which was making him bleed worse. She couldn't do the 6-8 stitches because of how he was being so instead she did 3 or 4 and then a mattress stitch (which she said was a larger one to make up for the ones she couldn't do). He has to keep them in for 7 days then get removed. Hope the next 7 days go smoothly and he doesn't mess with them.
Warning Pictures are a little gory.
This was from hubby's cell phone at the doc's before the nurse cleaned him(after we'd wiped him down and held pressure on it before we got to the doc) so the picture quality isn't very good.
And after once we got home
Monday, June 28, 2010
Busy week ahead
First off great news. I had posted a couple week ago about Seamus eye specialist appointment not being till the end of August, but then they were able to move it to July 14th and "Squeeze" us in, then last Monday I got a call from his normal eye doctor saying that the day has changed again. On Monday I got a call from his eye doc saying that another patient had gone to the eye specialist that Seamus was going to go to and they were not happy with this specialist after all, so they did some research and found a different pediatric eye specialist(PES). The new PES we will be going to, dh has even herd about, even before I did, a lady at work told him about this PES and how she loves her. The PES we will be going to now is part of Sacred Heart Medical Center, and that right there made me feel better, them being part of a top rated hospital. The best news about going to a different PES, they could get us in sooner without having to "squeeze" us in. Seamus' new appointment is Friday July 2nd!! We have to be there by 9:45 so that means we are going to have to be up at around 7am, and have Kieran to my mom's house by 8:30am then stop to grab some breakfast and head out of town. It takes about 30-40 minutes to get to Sacred Heart from here and that all depends on traffic. I'm excited they were able to get it moved closer and glad that we are going with a 'better' PES.
On Friday I got a voice-mail(I never answer phone numbers I don't know, but I had completely missed this call lol) saying to call back asap, that the speech therapist had an opening and a couple of people up next to get in and it would be who ever called her back first getting the slot. I ended up seeing the missed call about 30 minutes after she called so I was worried someone else had filled the spot. Luckily no one else had called back. We've been waiting for speech for Seamus since the end of January, thats how long the waiting list is, and finally after almost 7months we are in and I'm so happy. We go this afternoon, his appt is at 2pm and we have to be there at 1:45, the stinky thing is that hubby works till 2:30 so he wont be going and I'll be juggling both kids on my own(and its a feet to go anywhere with Seamus especially alone with both of them). I'm not sure what we will be doing today but I'm glad to finally be going.
All this is on top of our 2 normal weekly things, Kieran's Early Headstart home visit, usually on Wednesdays but this will will be tomorrow, and Seamus' counselors on Thursday.
On Friday I got a voice-mail(I never answer phone numbers I don't know, but I had completely missed this call lol) saying to call back asap, that the speech therapist had an opening and a couple of people up next to get in and it would be who ever called her back first getting the slot. I ended up seeing the missed call about 30 minutes after she called so I was worried someone else had filled the spot. Luckily no one else had called back. We've been waiting for speech for Seamus since the end of January, thats how long the waiting list is, and finally after almost 7months we are in and I'm so happy. We go this afternoon, his appt is at 2pm and we have to be there at 1:45, the stinky thing is that hubby works till 2:30 so he wont be going and I'll be juggling both kids on my own(and its a feet to go anywhere with Seamus especially alone with both of them). I'm not sure what we will be doing today but I'm glad to finally be going.
All this is on top of our 2 normal weekly things, Kieran's Early Headstart home visit, usually on Wednesdays but this will will be tomorrow, and Seamus' counselors on Thursday.
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