Friday, October 22, 2010

Special Needs Blog Hop

I found this blog hop trough another JM mommy (Dotcomkari) and decided to link up too.
Its pretty neat, hosted by Autism Learning Felt and Super Mommy To The Rescue.

They have a Question on the blog so I will go a head and answer it.

Question for this Week: Introduce yourself and your Blog to us so we can get to know you:

I'm Justine, 23 and I live in North Idaho. I married Kenneth in 2006 after a year long engagement. Together we have 2 great kids.

My oldest, Seamus, is 4, born July 18th, 2006. Seamus just started preschool at Head Start and is loving it (and I'm liking the breaks too hehe). His life has been far from easy. When Seamus was a newborn he was constantly spitting up and throwing up, we went to a few doctors and NP's at our office and they all said it was normal. We finally found a doc in our clinic that told it it wasn't normal and that Seamus had GERD Reflux (he would vomit a foot or more a way a few times a day and was always spitting up after each meal), we tried a few medications before Previcad finally worked. When Seamus was 2mo old the Torticollis was caught and he started OT through Early Intervention, and a few weeks later we found the Plagiocephally (caught by the Tort.). While in OT we started realizing his delays and how far behind he was, he was anywhere from 3-6mo delayed on average, some things more. His doctor wasn't sure why he was delayed, she said that Tort doesn't usually cause kids to be delayed like he was. Seamus went through a couple tests, like a CT scan and a Cystic Fibrosis test, but they all came back normal. The CT Scan did reveal Macrocephally, which we sort of knew since his head had always been in the 95+%. When he was 6 or 7 months old he started PT as well as continuing his OT. At 15months they wanted him to start Speech Therapy too but we were moving out of state. The state we moved to said that Seamus was fine and they wouldn't offer any services to him. We moved back home 8months later and got right back into the swing of things. Seamus was now having behavior issues as well as his speech problems. His doctor is great and on the ball and listens to what we have to say. We started him on Melatonin in June of '09 because he was only sleeping for 3-4hrs a night and his behavior issues got worse with the lack of sleep. But the melatonin didn't help fully and in January he was started on Tenex to help calm him down (he's constantly moving and in motion), and she also referred him to a Counselor and hopped he would also be seen to get evaluated for Aspergers (what we thought for years he had), and she also put a referral in for Speech because his speech had gotten behind. Consoling was going great, but no one would see him for an Autism spectrum evaluation telling us to go to Infant-Toddler/Early Intervention (He was too old for EI and the others wouldn't see him till age 6). I was super upset with the run around we were still getting about things as was his doctor. Finally in July (almost 7 months after the referral) we got a call from the Speech Pathologist saying they had an opening and they wanted to evaluate Seamus. The day we went in was like a huge light bulb going off for us. Seamus was diagnosed with Articulation Disorder and a Minor Speech delay (its more how he says the words we can't understand), but during the evaluation the Speech Therapist asked me if he'd been evaluated for Sensory issues. The feeling when she said that was almost peaceful and wonderful, finally someone else was noticing things besides me and my family and it wasn't all in my head. She helped us get a referral from out doctor so Seamus could see the Sensory OT at the same place we have ST at. It took a month to get into the OT eval but that day was also a great day for me, finally figuring things out and a way that we can help Seamus. Seamus was diagnosed with Sensory Processing Disorder and a Fine Motor delay(his average score in FM was a 25%). Seamus has both Hyper and Hypo Sensitivities, but now that we know more about them and why he does some of the things he does its become very helpful.

Kieran is my second child, she is 18½ months old, born April 8th, 2009. Kieran is a lot different then her brother. She's always been more social then he was at similar ages and she loves to interact with people (with Seamus that's only started in the last 1-1.5yrs). She loves to dance and is starting to like to dress up. Kieran has hit the age of Separation Anxiety and stands by me when ever we go somewhere new (something Seamus has never done). Kieran is behind in speech but for right now they are just watching her, and I was told recently because of Seamus' issues Kieran may be behind since she models after him. Its been a whole different experience with Kieran and its "odd" seeing how children from the same 2 parents can be so different developmentally and physically.

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