Saturday, June 1, 2013

A quick look at me

I don't think I've gone into much detail (I'd have to go back and look) about my issues. Honestly its taken me quite a while to not be embarresed that at 24 I had to start using a cane (well actually I'm SUPPOSED to use a walker) and leg braces. Finally 2yrs later I'm in a little better place in my head about it. Theres nothing I can do, no cures, and its just how I am and I have to learn to accept it even more then where I'm at today. Anyway I want to share two video's with my readers.

This first one was done in July of 2011 so basically 2yrs ago



This one was done tonight. I've been in quite a bit of pain lately, especially in my shoulder and neck as well.

2 comments:

  1. Are you sure you have fshd,you seem very young to be suffering so badly.

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    1. Never had the DNA test because I cannot afford it, but yes I have it (from what I've been told by 2 doctors one a NeuroMuscular doctor that specializes in Neuromuscular diseases). It has nothing to do with age whatsoever. It affects people differently even people younger then me can be affected worse then I am! Some people are affected very young, others in older age its a varying disease you can't base it on age, gender, or nationality.
      Take a look at Kristin Duquette, she's younger then me and affected even worse then I am. Like I said it vary's greatly.
      http://www.youtube.com/watch?v=OiNlZvocJPI

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